{"id":47495,"date":"2020-05-08T16:31:16","date_gmt":"2020-05-08T13:31:16","guid":{"rendered":"http:\/\/infois.ro\/?p=47495"},"modified":"2020-05-09T07:35:23","modified_gmt":"2020-05-09T04:35:23","slug":"a-fost-lansat-ghidul-pacientilor-cu-hemofilie-in-perioada-pandemiei-covid-19","status":"publish","type":"post","link":"http:\/\/infois.ro\/?p=47495","title":{"rendered":"A fost lansat \u201dGhidul pacien\u021bilor cu hemofilie \u00een perioada pandemiei COVID-19\u201d"},"content":{"rendered":"<p><a href=\"http:\/\/infois.ro\/wp-content\/uploads\/2020\/05\/hemofilie.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft  wp-image-47496\" src=\"http:\/\/infois.ro\/wp-content\/uploads\/2020\/05\/hemofilie.jpg\" alt=\"\" width=\"356\" height=\"503\" srcset=\"http:\/\/infois.ro\/wp-content\/uploads\/2020\/05\/hemofilie.jpg 640w, http:\/\/infois.ro\/wp-content\/uploads\/2020\/05\/hemofilie-212x300.jpg 212w\" sizes=\"(max-width: 356px) 100vw, 356px\" \/><\/a><\/p>\n<p style=\"text-align: justify;\">Asocia\u021bia Na\u021bional\u0103 a Hemofilicilor din Rom\u00e2nia (\u201dANHR\u201d) \u0219i Asocia\u021bia Ini\u021biativa Pacientul 2.0. (\u201cPacientul 2.0.\u201d) a lansat vineri, 8 mai, \u201dGhidul pacien\u021bilor cu hemofilie \u00een contextul pandemiei COVID-19\u201d. \u00centr-un limbaj simplificat, documentul vine cu o serie de recomand\u0103ri \u0219i informa\u021bii utile \u00een sprijinul pacien\u021bilor hemofilici at\u00e2t \u00een perioada pandemiei cu noul coronavirus, c\u00e2t \u0219i dincolo de aceasta:<\/p>\n<ul style=\"text-align: justify;\">\n<li>O sec\u021biune larg\u0103 de \u00eentreb\u0103ri primite de la pacien\u021bi \u0219i apar\u021bin\u0103tori, la care au r\u0103spuns dr. Melen Br\u00eenz\u0103, Medic Specialist Hematologie (Institutul Clinic Fundeni), \u0218.L. UMF Bucure\u0219ti Dr. Adriana Diaconu, Medic Primar Pediatrie \u0219i Oncologie-Hematologie Pediatric\u0103 (\u0218ef Sec\u021bie Pediatrie 1 Institutul Clinic Fundeni) \u0219i \u0218.L. UMF Ia\u0219i Dr. Cristina T\u0103rniceriu, Medic Primar Hematolog (Spitalul Sf. Spiridon din Ia\u0219i \u0219i Coordonatorul Progamului Na\u021bional de Hemofilie din Ia\u0219i)<\/li>\n<li>Accesul la tratament \u00een perioada pandemiei<\/li>\n<li>Experien\u021ba pacientului cu hemofilie \u00een contextul actual<\/li>\n<li>R\u0103spunsurile Casei Na\u021bionale de Asigur\u0103ri de S\u0103n\u0103tate la \u00eentreb\u0103rile pacien\u021bilor<\/li>\n<li>Proiectele prin care ANHR vine \u00een sprijinul pacien\u021bilor<\/li>\n<li>Informa\u021bii generale despre noul coronavirus \u0219i m\u0103suri de protec\u021bie recomandate de Organiza\u021bia Mondial\u0103 a S\u0103n\u0103t\u0103\u021bii<\/li>\n<li>Linkuri utile pentru informarea corect\u0103 a pacien\u021bilor cu hemofilie.<\/li>\n<\/ul>\n<p style=\"text-align: justify;\">\u201dTr\u0103im parc\u0103\u00a0 vremuri ireale. Pandemia ne-a surprins \u0219i ne-a dat peste cap vie\u021bile tuturor. Comunitatea hemofilic\u0103 din \u021bara noastr\u0103 tr\u0103ie\u0219te cu team\u0103 \u0219i cu nesiguran\u021b\u0103 \u00een ceea ce prive\u0219te asigurarea continu\u0103rii tratamentului antihemofilic. Pacien\u021bii cu hemofilie trebuie s\u0103 beneficieze de tot sprijinul de care au nevoie, s\u0103 aib\u0103 acces la informa\u021bie pentru a se proteja, dar \u0219i pentru a avea acces la tratament. Facem un apel \u0219i c\u0103tre autorit\u0103\u021bi s\u0103 nu uite de aceast\u0103 categorie de bolnavi cronici \u0219i s\u0103 le acorde sus\u021binerea necesar\u0103\u201d, declar\u0103 Nicolae Oniga, pre\u0219edintele ANHR. \u201dPacien\u021bii cu hemofilie fac parte din categoria pacien\u021bilor cronici mai vulnerabili la infec\u021bia cu COVID-19. Totodat\u0103, fac parte \u0219i din categoria celor care au nevoie de tratament continuu pe care, din p\u0103cate, \u00eel pot ridica numai de la spital. Acesta ar fi un impediment fa\u021b\u0103 de ceilal\u021bi pacien\u021bi care pot lua tratamentul de la farmacie. La Institutul Fundeni din Bucure\u0219ti, de exemplu, pacien\u021bii merg s\u0103 ridice factorul de care au nevoie. Recomandarea este s\u0103 sune cu o zi \u00eenainte pentru a putea fi trecu\u021bi pe lista care permite accesul \u00een spital\u201d, afirm\u0103, la r\u00e2ndul s\u0103u, dr. Melen Br\u00eenz\u0103, Medic Specialist Hematologie, Institutul Clinic Fundeni. \u00a0\u00cen aceast\u0103 perioad\u0103, pacien\u021bii cu hemofilie trebuie s\u0103 \u021bin\u0103 cont de o serie de recomand\u0103ri. Una dintre ele este continuarea tratamentului. Sub nicio form\u0103, ace\u0219tia nu trebuie s\u0103 \u00ee\u0219i \u00eentrerup\u0103 administrarea sau reducerea medica\u021biei. \u00a0\u201dAceast\u0103 \u00eentrerupere a tratamentului poate afecta. Dac\u0103 este o form\u0103 sever\u0103 de hemofilie \u0219i pacientul era pe profilaxie, \u00eentreruperea tratamentului cre\u0219te riscul de s\u00e2ngerare \u0219i de apari\u021bie a accidentelor hemoragice spontane\u201d, declar\u0103 dr. Cristina T\u0103rniceriu, Medic Primar Hematolog, Spitalul \u201cSf. Spiridon\u201d din Ia\u0219i, coordonatorul Progamului Na\u021bional de Hemofilie din Ia\u0219i. \u00cen perioada pandemiei, mediul online a devenit unul dintre cele mai importante canale de comunicare pentru pacien\u021bi, medici \u0219i autorit\u0103\u021bi. Informarea \u0219i furnizarea corect\u0103 sunt vitale \u00een acest context. \u201dPacientul 2.0 este o platform\u0103 creat\u0103 cu scopul de a oferi informa\u021bii despre s\u0103n\u0103tate verificate medical \u0219i pe limba pacien\u021bilor. Dac\u0103 ghidul acesta digital va ajuta oamenii s\u0103 ajung\u0103 mai repede sau mai u\u0219or la diagnostic, tratament sau sprijin \u00een \u00eencercarea lor, este tot ce ne-am putea dori\u201d, declar\u0103 Lucian Ioni\u021b\u0103, co-fondator <a href=\"https:\/\/www.facebook.com\/Pacientul20\/\">Pacientul 2.0<\/a>.<\/p>\n<p style=\"text-align: justify;\">\n","protected":false},"excerpt":{"rendered":"<p>Asocia\u021bia Na\u021bional\u0103 a Hemofilicilor din Rom\u00e2nia (\u201dANHR\u201d) \u0219i Asocia\u021bia Ini\u021biativa Pacientul 2.0. (\u201cPacientul 2.0.\u201d) a&#8230; <a class=\"meta-more\" href=\"http:\/\/infois.ro\/?p=47495\">more <span class=\"meta-nav\">&raquo;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":47496,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[41,24],"tags":[74,13025,13340,40,3965,13132],"aioseo_notices":[],"_links":{"self":[{"href":"http:\/\/infois.ro\/index.php?rest_route=\/wp\/v2\/posts\/47495"}],"collection":[{"href":"http:\/\/infois.ro\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/infois.ro\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/infois.ro\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/infois.ro\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=47495"}],"version-history":[{"count":1,"href":"http:\/\/infois.ro\/index.php?rest_route=\/wp\/v2\/posts\/47495\/revisions"}],"predecessor-version":[{"id":47497,"href":"http:\/\/infois.ro\/index.php?rest_route=\/wp\/v2\/posts\/47495\/revisions\/47497"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/infois.ro\/index.php?rest_route=\/wp\/v2\/media\/47496"}],"wp:attachment":[{"href":"http:\/\/infois.ro\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=47495"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/infois.ro\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=47495"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/infois.ro\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=47495"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}